Could my Chronic Headaches and Migraines be Chronic Lyme?

I’ve questioned this for many years, but after having my first Live Blood Analysis mere curiosity is turning into action. I’m researching local Lyme specialists to rule out Lyme or other tick-borne illnesses and co-infections. Although I’m finding long-term antibiotics to be the typical treatment, I will continue on my mission to heal my gut – not further destroy it.

It was recommended I look into Hyperbaric Oxygen Therapy (HBOT) as an alternative, but the suggested 90-minute “dives” twice a day for 10 days costs $3900, which excludes lodging and rations. I prefer to go the IV Ozone route, but I need to learn more about the number of sessions and cost.

I’m also gratefully being pointed toward IGeneX, Inc., which as their website states, is a “reference laboratory specializing in state-of-the-art clinical and research testing for Lyme Disease and associated Tick-borne Diseases.” On a separate note, I’ve ordered a $99 23andMe kit to learn more about my DNA.

Chronic Lyme would definitely explain why Neurofeedback isn’t touching my chronic headaches or migraines. And also why a Paleo diet has improved many symptoms, except chronic headaches and migraines.

Looking back, I can recall being bitten by two ticks in my 41 years – once in New York and once in California. The first time I was in elementary school and the incident frightened me terribly, as you can imagine. While shampooing my hair, I felt something strange on my scalp. I rinsed the shampoo and once I got out of the shower, I parted my hair to take a look in the mirror. As I made out the wiggling, tiny hind legs of a bug, I let out a scream, which sent my mother running. The tick was burrowing into my head, and was almost halfway in. My mom had to dig into my scalp to safely remove the whole body.

It was in elementary school that I first started experiencing full-body mystery rashes, blurry vision and pain “behind my eyes.” A typical report card documented poor concentration and reading comprehension. I was sick often as a child with fevers, colds, flu, strep, bronchitis, came close to pneumonia, and growing pains were tear-filled and excruciating.

The second bite occurred a year or so after high school when my boyfriend and I went for a hike. But by that time my headaches were already pretty chronic. I didn’t experience a rash with either bite, although I may have on my scalp and it was hidden by hair. Then again, not everyone gets a rash.

Speaking of rashes, it would be interesting if Lyme has anything to do with Prurigo Pigmentosa – the fun rash I get every time I go into Ketosis.

I will continue with Neurofeedback once a week while I work on scheduling time with a Lyme specialist.

12 thoughts on “Could my Chronic Headaches and Migraines be Chronic Lyme?

  1. I am sensitive to tyramine and histamine. You may want to look up amine sensitivity. It seems you have similar symptoms as I do.


    1. I did cut out amines for a portion of my Paleo Keto path and didn’t find a difference, but it’s always possible. Thank you for sharing your experience.


  2. I am glad you found me and I found you. Your symptoms sound like they could be Lyme. I am glad you know about Igenex, they are the best for accuracy. The standard Lyme test can miss 40-60% of the bacteria. That is a fail in my opinion. I have heard allot about Ozone therapies but never done any. Some good some bad. Dave Asprey has one podcast where he talks about it. He also had Lyme and mold issues. Everyone I know with Chronic Lyme that has had 23and Me done had had some genetic mutations. I think the Lyme causes some of them. Many with Lyme also have Histamine issues. I was reading today to try and help a friend and found this “Underlying conditions for increased availability may be an endogenous histamine overproduction caused by allergies, mastocytosis, bacterias, gastrointestinal bleeding, or increased exogenous ingestion of histidine or histamine by food or alcohol.” Is Lyme causing histamine issues for some people? It makes sense to me. There are a lot of natural treatments to look at. Please let me know what you find out and ask me anything. Be kind to yourself~Beth


    1. I’m glad we found each other too, Beth! Thank you so much for the information. Looking at the IGeneX order form, I’m at a loss which of the co-infections panels to choose. I was hoping to get my primary MD to sign it off, but with all these choices it’s probably best to go see a LLMD before ordering. Thoughts?


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